Many people have been asking me about Actemra (tocilizumab) given that I started a monthly dosing regimen of it a few months ago. Below you’ll find some common questions I’ve been fielding.
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I’m walking down the street of a major American metropolis, bagel in hand, rushing to find a park bench so I can log in to Zoom. I look down at my feet, pause, and whip out my phone.
Perfect. This will do. *shutter click*
Leave it to a patch of dingy city sidewalk to embody my feelings of living with an inflamed brain.
Autoimmune encephalitis (AE) is a nightmare.
Internists don’t want to touch it. Psychiatrists look on with sympathy. And most neurologists would rather not acknowledge it at all, unless scores of paraclinical investigations are screaming in their face.
So you might begin to imagine how dejecting it feels to be the one actually living with this illness.
The plane lifts. Like many traveling for the first time since the pandemic began, anxious feelings churn beneath my calm exterior.
Is it safe to fly? Will I regret this later?
Good news! Bad news! Good news!
…and repeat!
Every week brought some different health surprises, the details of which matter much less than how I’m closing out this month (more on that later). Let’s just say that when there are multiple professionals on your healthcare team, the strain in coordinating communications and getting them on the same page becomes bloated.