Many people have been asking me about Actemra (tocilizumab) given that I started a monthly dosing regimen of it a few months ago. Below you’ll find some common questions I’ve been fielding.View Post
The world that doctors live in…
The classic story arc of autoimmune encephalitis goes something like this: a patient presents to the hospital emergency room with an abrupt onset of psychotic features that include hallucinations, paranoia, anxiety, and strange behavioural changes.
Eat, make some calls, attend appointments, peruse medical journals, sleep, repeat.
Most days were an exhausting barrage of monotony, all in the name of attempting to move my medical recovery forward. It’s mind-boggling how much time can be consumed just coordinating medical logistics, not to mention the cognitive fatigue that arises from keeping tabs on multiple moving parts.
It’s been a tough month on the personal front, with several factors coalescing together to create a turbulent September. This won’t be my usual “Resilience Report”—there’s too much going on for me to allocate energy…
Just when you think you’ve landed on stable ground, you find your feet giving way to quicksand. At least, that’s been my journey with autoimmune encephalitis (AE).
Did I enjoy smooth waters on the heels of the improvements I mentioned last month? Nope!
Maybe you’re just here because you’ve heard me complain about relapsing, and want to find out if my Rituximab has kicked in yet. In that case, skip down to the last section.