Learning to Bloom Where You’re Planted | Monthly Resilience Report: June 2021 (Last One)

Two years ago this month, I was hospitalized for the first time. I was diagnosed with seronegative autoimmune encephalitis (AE). And I started 5 months of immunotherapy, roughly 5 years after my illness first began.

By November 2019, I thought the battle was won: I seemingly had all the answers to solve my medical mystery, which had been open since 2014. It was clear by that point that standard AE treatments had worked wonders to bring me back to my original baseline of good health and cognitive functioning. Sure, I knew relapsing was a possibility; but were that to happen, I figured that healing again would be as simple as resuming Rituxan.

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Wobble here, wobble there | Monthly Resilience Report: April 2021

Each month usually has a general direction or theme that I can speak to; not so much April, however. It’s been a month of everything: healing, setback, haze, peace, struggle, stress, and growth. I’m not making a beeline from A to B, that’s for sure.

Despite the detours and the weird place I find myself today, I do have faith that I’m slowly making it through to where I want to be.

Bumps in the Road | Monthly Resilience Report: March 2021

All things considered, I reaaaaaally don’t have much to complain about.

That’s one major advantage of coming out the other side of a major medical issue as a young adult: recover, and the magnitude of most life issues dramatically diminishes compared to how you might have perceived the same life issues had you never gotten sick at all.

Every day I’m celebratin’ 🎵 | Monthly Resilience Report: February 2021

Have you ever tried to compress ~10 months of life into a single month’s worth of time?

Things uh, get a little chaotic 😅

Different highs, different lows | Monthly Resilience Report: November 2020

Good news! Bad news! Good news!

…and repeat!

Every week brought some different health surprises, the details of which matter much less than how I’m closing out this month (more on that later). Let’s just say that when there are multiple professionals on your healthcare team, the strain in coordinating communications and getting them on the same page becomes bloated.

Spinning my wheels in the Texas heat | Monthly Resilience Report: August 2020

Just when you think you’ve landed on stable ground, you find your feet giving way to quicksand. At least, that’s been my journey with autoimmune encephalitis (AE).

Did I enjoy smooth waters on the heels of the improvements I mentioned last month? Nope!

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