Wobble here, wobble there | Monthly Resilience Report: April 2021

Each month usually has a general direction or theme that I can speak to; not so much April, however. It’s been a month of everything: healing, setback, haze, peace, struggle, stress, and growth. I’m not making a beeline from A to B, that’s for sure.

Despite the detours and the weird place I find myself today, I do have faith that I’m slowly making it through to where I want to be.

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This is what it took to lift me out of an autoimmune encephalitis relapse

The plane lifts. Like many traveling for the first time since the pandemic began, anxious feelings churn beneath my calm exterior.

Is it safe to fly? Will I regret this later?

Bumps in the Road | Monthly Resilience Report: March 2021

All things considered, I reaaaaaally don’t have much to complain about.

That’s one major advantage of coming out the other side of a major medical issue as a young adult: recover, and the magnitude of most life issues dramatically diminishes compared to how you might have perceived the same life issues had you never gotten sick at all.

Every day I’m celebratin’ 🎵 | Monthly Resilience Report: February 2021

Have you ever tried to compress ~10 months of life into a single month’s worth of time?

Things uh, get a little chaotic 😅

The Real-World Challenges of Surviving an Autoimmune Encephalitis Diagnosis (A Rant)

The world that doctors live in…

The classic story arc of autoimmune encephalitis goes something like this: a patient presents to the hospital emergency room with an abrupt onset of psychotic features that include hallucinations, paranoia, anxiety, and strange behavioural changes.

Medical Chores Galore | Monthly Resilience Report: October 2020

Eat, make some calls, attend appointments, peruse medical journals, sleep, repeat.

Most days were an exhausting barrage of monotony, all in the name of attempting to move my medical recovery forward. It’s mind-boggling how much time can be consumed just coordinating medical logistics, not to mention the cognitive fatigue that arises from keeping tabs on multiple moving parts.

The information on this site, such as text, graphics, images, and videos, is designed to provide a patient perspective on understanding and living with a long-lasting illness. It is for general informational and entertainment purposes only, and does not serve as a substitute for consulting with your own healthcare professionals or conducting your own research. It is not intended to serve as medical advice, or to be used to diagnose, treat, cure, or prevent any disease. While every effort is made to provide accurate information on the subjects discussed, no responsibility is assumed for any errors or omissions in the content. Always seek the advice of a qualified healthcare professional to assess and guide your medical care.

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