It’s been a tough month on the personal front, with several factors coalescing together to create a turbulent September. This won’t be my usual “Resilience Report”—there’s too much going on for me to allocate energy…
Just when you think you’ve landed on stable ground, you find your feet giving way to quicksand. At least, that’s been my journey with autoimmune encephalitis (AE).
Did I enjoy smooth waters on the heels of the improvements I mentioned last month? Nope!
Have you ever found yourself thinking “well that sucked!” after finishing a conversation with a doctor?
That was me earlier this month—feeling not only that I had wasted time, energy, and money, but that I also never want to face this new doctor again.
You’ve heard that autoimmune encephalitis (AE) recovery is slow.
Good doctors—the ones that mentally prepare you for life after the worst of your acute symptoms have dissipated—tell you to be kind to yourself as you recuperate.
But what does that really mean? What does that actually look like? And what does that feel like?
Maybe you’re just here because you’ve heard me complain about relapsing, and want to find out if my Rituximab has kicked in yet. In that case, skip down to the last section.
Meet the Sawtooth Pattern of Recovery You’ve made it past the danger zone. The one that left your mind spiralling down through reality into a freefall of darkness. The one that sent doctors scrambling to…