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Autoimmune Encephalitis

The 7 Stages of Receiving Medical Treatment, as Told by a Rare Disease Survivor

The 7 Stages of Receiving Medical Treatment, as Told by a Rare Disease Survivor

One day you’re at 60% capacity, feeling happy about the progress you’ve made towards recovery. That’s a far cry from the 5% you were in at the hospital when you were admitted for an acute attack.

But the next day, you’re back at 30%.

One day you’re in shock, having met a new doctor who not only acknowledged your deteriorating health but offered you the option of escalating treatment.

But the next day…

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Brain fog: What does it even mean? How can you get help for it? (Part 1)
Autoimmune Encephalitis

Brain fog: What does it even mean? How can you get help for it? (Part 1)

Sometimes it isn’t so obvious what we mean by the term brain fog. It gets tossed around in circles ranging from those sick with the common cold, to people who are aging, to those that are overworked and without their morning cup of joe. So what do we really mean by it?

October 12, 2020
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How to bounce back from a bad doctor’s appointment
Chronic Illness

How to bounce back from a bad doctor’s appointment

Have you ever found yourself thinking “well that sucked!” after finishing a conversation with a doctor?

That was me earlier this month—feeling not only that I had wasted time, energy, and money, but that I also never want to face this new doctor again.

August 26, 2020
4 Comments
The chronic illness nightmare that’s becoming a sweeping coronavirus reality
Chronic Illness

The chronic illness nightmare that’s becoming a sweeping coronavirus reality

The Insidious Hit and Run Imagine that you’re young, healthy, and headed back to school. Crisp autumn weather gains ground against the retreating heat of summer. The turn of the seasons ushers in the excitement…

June 26, 2020
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