You’ve heard that autoimmune encephalitis (AE) recovery is slow.
Good doctors—the ones that mentally prepare you for life after the worst of your acute symptoms have dissipated—tell you to be kind to yourself as you recuperate.
But what does that really mean? What does that actually look like? And what does that feel like?
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Maybe you’re just here because you’ve heard me complain about relapsing, and want to find out if my Rituximab has kicked in yet. In that case, skip down to the last section.
Meet the Sawtooth Pattern of Recovery You’ve made it past the danger zone. The one that left your mind spiralling down through reality into a freefall of darkness. The one that sent doctors scrambling to…
It’s a lovely day in the neighbourhood. The sun is blooming, birds are shining, flowers are sing—wait; that’s not quite how it goes. Then it hits you: oh yeah, your brain is injured. These days,…
In this post we cover Rituximab/Rituxan and steroid treatments in the context of autoimmune encephalitis. But first, bear with me as I take a hot moment to relay a quick personal update. Please note that…