This is what it took to lift me out of an autoimmune encephalitis relapse

The plane lifts. Like many traveling for the first time since the pandemic began, anxious feelings churn beneath my calm exterior.

Is it safe to fly? Will I regret this later?

View Post

The Real-World Challenges of Surviving an Autoimmune Encephalitis Diagnosis (A Rant)

The world that doctors live in…

The classic story arc of autoimmune encephalitis goes something like this: a patient presents to the hospital emergency room with an abrupt onset of psychotic features that include hallucinations, paranoia, anxiety, and strange behavioural changes.

Brain fog: What does it even mean? How can you get help for it? (Part 1)

Sometimes it isn’t so obvious what we mean by the term brain fog. It gets tossed around in circles ranging from those sick with the common cold, to people who are aging, to those that are overworked and without their morning cup of joe. So what do we really mean by it?

Autoimmune Encephalitis Recovery, Part 2: The Day-to-Day Emotional Challenges

You’ve heard that autoimmune encephalitis (AE) recovery is slow.

Good doctors—the ones that mentally prepare you for life after the worst of your acute symptoms have dissipated—tell you to be kind to yourself as you recuperate.

But what does that really mean? What does that actually look like? And what does that feel like?

Autoimmune Encephalitis Recovery, Part 1: A Look Behind the Scenes of Emotional Breakdown

Meet the Sawtooth Pattern of Recovery You’ve made it past the danger zone. The one that left your mind spiralling down through reality into a freefall of darkness. The one that sent doctors scrambling to…

The chronic illness nightmare that’s becoming a sweeping coronavirus reality

The Insidious Hit and Run Imagine that you’re young, healthy, and headed back to school. Crisp autumn weather gains ground against the retreating heat of summer. The turn of the seasons ushers in the excitement…

The information on this site, such as text, graphics, images, and videos, is designed to provide a patient perspective on understanding and living with chronic illness. It is for general informational and entertainment purposes only, and does not serve as a substitute for consulting with your own healthcare professionals or conducting your own research. It is not intended to serve as medical advice, or to be used to diagnose, treat, cure, or prevent any disease. While every effort is made to provide accurate information on the subjects discussed, no responsibility is assumed for any errors or omissions in the content. Always seek the advice of a qualified healthcare professional to assess and guide your medical care.

%d bloggers like this: