• Learning to Bloom Where You’re Planted | Monthly Resilience Report: June 2021 (Last One)

    Two years ago this month, I was hospitalized for the first time. I was diagnosed with seronegative autoimmune encephalitis (AE). And I started 5 months of immunotherapy, roughly 5 years after my illness first began.

    By November 2019, I thought the battle was won: I seemingly had all the answers to solve my medical mystery, which had been open since 2014. It was clear by that point that standard AE treatments had worked wonders to bring me back to my original baseline of good health and cognitive functioning. Sure, I knew relapsing was a possibility; but were that to happen, I figured that healing again would be as simple as resuming Rituxan.

    Mental Health Awareness Month and the RARE Compassion Program | Monthly Resilience Report: May 2021

    “If you don’t already have trauma from living with this illness, well—we’re certainly giving you reason to have it now.”

    This was said in jest by a hilarious cardiologist that attended to me during my hospital stay in January, in an attempt to add levity to the generally uncomfortable situation I was in. Some of this was due to the innate challenges of being hospitalized with autoimmune encephalitis (AE), while…

    Wobble here, wobble there | Monthly Resilience Report: April 2021

    Each month usually has a general direction or theme that I can speak to; not so much April, however. It’s been a month of everything: healing, setback, haze, peace, struggle, stress, and growth. I’m not making a beeline from A to B, that’s for sure.

    Despite the detours and the weird place I find myself today, I do have faith that I’m slowly making it through to where I want to be.

    This is what it took to lift me out of an autoimmune encephalitis relapse

    The plane lifts. Like many traveling for the first time since the pandemic began, anxious feelings churn beneath my calm exterior.

    Is it safe to fly? Will I regret this later?

    Bumps in the Road | Monthly Resilience Report: March 2021

    All things considered, I reaaaaaally don’t have much to complain about.

    That’s one major advantage of coming out the other side of a major medical issue as a young adult: recover, and the magnitude of most life issues dramatically diminishes compared to how you might have perceived the same life issues had you never gotten sick at all.

    Every day I’m celebratin’ 🎵 | Monthly Resilience Report: February 2021

    Have you ever tried to compress ~10 months of life into a single month’s worth of time?

    Things uh, get a little chaotic 😅

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