Spinning my wheels in the Texas heat | Monthly Resilience Report: August 2020

Just when you think you’ve landed on stable ground, you find your feet giving way to quicksand. At least, that’s been my journey with autoimmune encephalitis (AE).

Did I enjoy smooth waters on the heels of the improvements I mentioned last month? Nope!

View Post

How to bounce back from a bad doctor’s appointment

Have you ever found yourself thinking “well that sucked!” after finishing a conversation with a doctor?

That was me earlier this month—feeling not only that I had wasted time, energy, and money, but that I also never want to face this new doctor again.

Autoimmune Encephalitis Recovery, Part 2: The Day-to-Day Emotional Challenges

You’ve heard that autoimmune encephalitis (AE) recovery is slow.

Good doctors—the ones that mentally prepare you for life after the worst of your acute symptoms have dissipated—tell you to be kind to yourself as you recuperate.

But what does that really mean? What does that actually look like? And what does that feel like?

From on the Fritz to on the Mend: The Invisible Realities of Brain Injury Recovery

It’s a lovely day in the neighbourhood. The sun is blooming, birds are shining, flowers are sing—wait; that’s not quite how it goes. Then it hits you: oh yeah, your brain is injured. These days,…

COVID-19? Coronavirus? Try adding a different “co” to the mix—community.

Everyone’s got the “CO” on their tongues these days. It’s unavoidable. But rather than losing your thoughts to coronavirus-provoked ruminations and anxieties, let’s talk about the utility of exploring a “co” of a different kind—community.…

It Wasn’t Supposed To Be This Way.

It’s about 2 months past my birthday, and I feel like much of the progress I had made in the handful of months preceding that milestone has slowly become undone. 2018 had ended so well.…

The information on this site, such as text, graphics, images, and videos, is designed to provide a patient perspective on understanding and living with chronic illness. It is for general informational and entertainment purposes only, and does not serve as a substitute for consulting with your own healthcare professionals or conducting your own research. It is not intended to serve as medical advice, or to be used to diagnose, treat, cure, or prevent any disease. While every effort is made to provide accurate information on the subjects discussed, no responsibility is assumed for any errors or omissions in the content. Always seek the advice of a qualified healthcare professional to assess and guide your medical care.

%d bloggers like this: