The Real-World Challenges of Surviving an Autoimmune Encephalitis Diagnosis (A Rant)

The world that doctors live in…

The classic story arc of autoimmune encephalitis goes something like this: a patient presents to the hospital emergency room with an abrupt onset of psychotic features that include hallucinations, paranoia, anxiety, and strange behavioural changes.

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Medical Chores Galore | Monthly Resilience Report: October 2020

Eat, make some calls, attend appointments, peruse medical journals, sleep, repeat.

Most days were an exhausting barrage of monotony, all in the name of attempting to move my medical recovery forward. It’s mind-boggling how much time can be consumed just coordinating medical logistics, not to mention the cognitive fatigue that arises from keeping tabs on multiple moving parts.

Hello hurricane season: Flying pillows edition | Monthly Resilience Report: September 2020

It’s been a tough month on the personal front, with several factors coalescing together to create a turbulent September. This won’t be my usual “Resilience Report”—there’s too much going on for me to allocate energy…

Spinning my wheels in the Texas heat | Monthly Resilience Report: August 2020

Just when you think you’ve landed on stable ground, you find your feet giving way to quicksand. At least, that’s been my journey with autoimmune encephalitis (AE).

Did I enjoy smooth waters on the heels of the improvements I mentioned last month? Nope!

Just meandering through the marathon of chronic illness life | Monthly Resilience Report: July 2020

Maybe you’re just here because you’ve heard me complain about relapsing, and want to find out if my Rituximab has kicked in yet. In that case, skip down to the last section.

How I’m using Rituximab and steroids to treat my autoimmune disease

In this post we cover Rituximab/Rituxan and steroid treatments in the context of autoimmune encephalitis. But first, bear with me as I take a hot moment to relay a quick personal update. Please note that…

The information on this site, such as text, graphics, images, and videos, is designed to provide a patient perspective on understanding and living with chronic illness. It is for general informational and entertainment purposes only, and does not serve as a substitute for consulting with your own healthcare professionals or conducting your own research. It is not intended to serve as medical advice, or to be used to diagnose, treat, cure, or prevent any disease. While every effort is made to provide accurate information on the subjects discussed, no responsibility is assumed for any errors or omissions in the content. Always seek the advice of a qualified healthcare professional to assess and guide your medical care.

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