Just when you think you’ve landed on stable ground, you find your feet giving way to quicksand. At least, that’s been my journey with autoimmune encephalitis (AE).
Did I enjoy smooth waters on the heels of the improvements I mentioned last month? Nope!
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You’ve heard that autoimmune encephalitis (AE) recovery is slow.
Good doctors—the ones that mentally prepare you for life after the worst of your acute symptoms have dissipated—tell you to be kind to yourself as you recuperate.
But what does that really mean? What does that actually look like? And what does that feel like?
Maybe you’re just here because you’ve heard me complain about relapsing, and want to find out if my Rituximab has kicked in yet. In that case, skip down to the last section.
Meet the Sawtooth Pattern of Recovery You’ve made it past the danger zone. The one that left your mind spiralling down through reality into a freefall of darkness. The one that sent doctors scrambling to…
The Insidious Hit and Run Imagine that you’re young, healthy, and headed back to school. Crisp autumn weather gains ground against the retreating heat of summer. The turn of the seasons ushers in the excitement…
Let’s not sugarcoat it: autoimmune encephalitis (AE) is a devastating disease to live with. There are soul-crushing lows that push both patients and caregivers to their emotional limits, leaving little unscathed in the life you…