• Spinning my wheels in the Texas heat | Monthly Resilience Report: August 2020

    Just when you think you’ve landed on stable ground, you find your feet giving way to quicksand. At least, that’s been my journey with autoimmune encephalitis (AE).

    Did I enjoy smooth waters on the heels of the improvements I mentioned last month? Nope!

    How to bounce back from a bad doctor’s appointment

    Have you ever found yourself thinking “well that sucked!” after finishing a conversation with a doctor?

    That was me earlier this month—feeling not only that I had wasted time, energy, and money, but that I also never want to face this new doctor again.

    Autoimmune Encephalitis Recovery, Part 2: The Day-to-Day Emotional Challenges

    You’ve heard that autoimmune encephalitis (AE) recovery is slow.

    Good doctors—the ones that mentally prepare you for life after the worst of your acute symptoms have dissipated—tell you to be kind to yourself as you recuperate.

    But what does that really mean? What does that actually look like? And what does that feel like?

    Just meandering through the marathon of chronic illness life | Monthly Resilience Report: July 2020

    Maybe you’re just here because you’ve heard me complain about relapsing, and want to find out if my Rituximab has kicked in yet. In that case, skip down to the last section.

    Autoimmune Encephalitis Recovery, Part 1: A Look Behind the Scenes of Emotional Breakdown

    Meet the Sawtooth Pattern of Recovery You’ve made it past the danger zone. The one that left your mind spiralling down through reality into a freefall of darkness. The one that sent doctors scrambling to…

    The chronic illness nightmare that’s becoming a sweeping coronavirus reality

    The Insidious Hit and Run Imagine that you’re young, healthy, and headed back to school. Crisp autumn weather gains ground against the retreating heat of summer. The turn of the seasons ushers in the excitement…

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