• The chronic illness nightmare that’s becoming a sweeping coronavirus reality

    The Insidious Hit and Run Imagine that you’re young, healthy, and headed back to school. Crisp autumn weather gains ground against the retreating heat of summer. The turn of the seasons ushers in the excitement…

    The Best Communities for Autoimmune Encephalitis Support

    Let’s not sugarcoat it: autoimmune encephalitis (AE) is a devastating disease to live with. There are soul-crushing lows that push both patients and caregivers to their emotional limits, leaving little unscathed in the life you…

    From on the Fritz to on the Mend: The Invisible Realities of Brain Injury Recovery

    It’s a lovely day in the neighbourhood. The sun is blooming, birds are shining, flowers are sing—wait; that’s not quite how it goes. Then it hits you: oh yeah, your brain is injured. These days,…

    The 7 Ways to Piss Off Your Neurologist, as Told by an Encephalitis Survivor

    At some point, you’ve probably seen a neurologist. Maybe they were the first specialist called to evaluate you in the emergency room. Maybe your family doctor referred you to one. Maybe you sought one out…

    How I’m using Rituximab and steroids to treat my autoimmune disease

    In this post we cover Rituximab/Rituxan and steroid treatments in the context of autoimmune encephalitis. But first, bear with me as I take a hot moment to relay a quick personal update. Please note that…

    COVID-19? Coronavirus? Try adding a different “co” to the mix—community.

    Everyone’s got the “CO” on their tongues these days. It’s unavoidable. But rather than losing your thoughts to coronavirus-provoked ruminations and anxieties, let’s talk about the utility of exploring a “co” of a different kind—community.…

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