The chronic illness nightmare that’s becoming a sweeping coronavirus reality

The Insidious Hit and Run Imagine that you’re young, healthy, and headed back to school. Crisp autumn weather gains ground against the retreating heat of summer. The turn of the seasons ushers in the excitement…

View Post

The Best Communities for Autoimmune Encephalitis Support

Let’s not sugarcoat it: autoimmune encephalitis (AE) is a devastating disease to live with. There are soul-crushing lows that push both patients and caregivers to their emotional limits, leaving little unscathed in the life you…

From on the Fritz to on the Mend: The Invisible Realities of Brain Injury Recovery

It’s a lovely day in the neighbourhood. The sun is blooming, birds are shining, flowers are sing—wait; that’s not quite how it goes. Then it hits you: oh yeah, your brain is injured. These days,…

The 7 Ways to Piss Off Your Neurologist, as Told by an Encephalitis Survivor

At some point, you’ve probably seen a neurologist. Maybe they were the first specialist called to evaluate you in the emergency room. Maybe your family doctor referred you to one. Maybe you sought one out…

How I’m using Rituximab and steroids to treat my autoimmune disease

In this post we cover Rituximab/Rituxan and steroid treatments in the context of autoimmune encephalitis. But first, bear with me as I take a hot moment to relay a quick personal update. Please note that…

The information on this site, such as text, graphics, images, and videos, is designed to provide a patient perspective on understanding and living with chronic illness. It is for general informational and entertainment purposes only, and does not serve as a substitute for consulting with your own healthcare professionals or conducting your own research. It is not intended to serve as medical advice, or to be used to diagnose, treat, cure, or prevent any disease. While every effort is made to provide accurate information on the subjects discussed, no responsibility is assumed for any errors or omissions in the content. Always seek the advice of a qualified healthcare professional to assess and guide your medical care.

%d bloggers like this: