Just meandering through the marathon of chronic illness life | Monthly Resilience Report: July 2020

Maybe you’re just here because you’ve heard me complain about relapsing, and want to find out if my Rituximab has kicked in yet. In that case, skip down to the last section.

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Autoimmune Encephalitis Recovery, Part 1: A Look Behind the Scenes of Emotional Breakdown

Meet the Sawtooth Pattern of Recovery You’ve made it past the danger zone. The one that left your mind spiralling down through reality into a freefall of darkness. The one that sent doctors scrambling to…

The chronic illness nightmare that’s becoming a sweeping coronavirus reality

The Insidious Hit and Run Imagine that you’re young, healthy, and headed back to school. Crisp autumn weather gains ground against the retreating heat of summer. The turn of the seasons ushers in the excitement…

The Best Communities for Autoimmune Encephalitis Support

Let’s not sugarcoat it: autoimmune encephalitis (AE) is a devastating disease to live with. There are soul-crushing lows that push both patients and caregivers to their emotional limits, leaving little unscathed in the life you…

From on the Fritz to on the Mend: The Invisible Realities of Brain Injury Recovery

It’s a lovely day in the neighbourhood. The sun is blooming, birds are shining, flowers are sing—wait; that’s not quite how it goes. Then it hits you: oh yeah, your brain is injured. These days,…

The 7 Ways to Piss Off Your Neurologist, as Told by an Encephalitis Survivor

At some point, you’ve probably seen a neurologist. Maybe they were the first specialist called to evaluate you in the emergency room. Maybe your family doctor referred you to one. Maybe you sought one out…

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