• Different highs, different lows | Monthly Resilience Report: November 2020

    Good news! Bad news! Good news!

    …and repeat!

    Every week brought some different health surprises, the details of which matter much less than how I’m closing out this month (more on that later). Let’s just say that when there are multiple professionals on your healthcare team, the strain in coordinating communications and getting them on the same page becomes bloated.

    The Real-World Challenges of Surviving an Autoimmune Encephalitis Diagnosis (A Rant)

    The world that doctors live in…

    The classic story arc of autoimmune encephalitis goes something like this: a patient presents to the hospital emergency room with an abrupt onset of psychotic features that include hallucinations, paranoia, anxiety, and strange behavioural changes.

    Medical Chores Galore | Monthly Resilience Report: October 2020

    Eat, make some calls, attend appointments, peruse medical journals, sleep, repeat.

    Most days were an exhausting barrage of monotony, all in the name of attempting to move my medical recovery forward. It’s mind-boggling how much time can be consumed just coordinating medical logistics, not to mention the cognitive fatigue that arises from keeping tabs on multiple moving parts.

    Brain fog: What does it even mean? How can you get help for it? (Part 1)

    Sometimes it isn’t so obvious what we mean by the term brain fog. It gets tossed around in circles ranging from those sick with the common cold, to people who are aging, to those that are overworked and without their morning cup of joe. So what do we really mean by it?

    Hello hurricane season: Flying pillows edition | Monthly Resilience Report: September 2020

    It’s been a tough month on the personal front, with several factors coalescing together to create a turbulent September. This won’t be my usual “Resilience Report”—there’s too much going on for me to allocate energy…

    Spinning my wheels in the Texas heat | Monthly Resilience Report: August 2020

    Just when you think you’ve landed on stable ground, you find your feet giving way to quicksand. At least, that’s been my journey with autoimmune encephalitis (AE).

    Did I enjoy smooth waters on the heels of the improvements I mentioned last month? Nope!

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